Nothing Holds Maryam Back

Nothing Holds Maryam Back

Maryam was born with a bump on her tummy. The birth defect created a pouch that held her abdominal organs outside of her body.

The moment the CDTC Care Team met the three-year-old in 2015, they knew her case would be complicated. She could not eat or breathe completely on her own. Walking and talking were difficult if not impossible. And, her new physicians marveled at the volume of the toddler’s medical records when they arrived from her family’s previous home in Chicago.

After having been through so much already, the family clearly needed support. The ECHO Program took over coordinating Maryam’s care; working alongside Dr. Robinson in our Primary Care Clinic and even Dr. Alonso in our Dental Clinic.

She had multiple surgeries to close the opening in her stomach. It was afterwards that Maryam became a true hero to her Care Coordinator Jennifer.

“I have patients with a lot of complications,” shares Jennifer. “But she’s (Maryam’s) the one that’s made progress in every area.”

The now six-year-old little girl is eating normally. Her breathing issues are a thing of the past. Walking is no problem and neither is running or playing. Not only is she talking, she’s trilingual. Pre-K has begun and she’s enjoying writing her name and coloring.

Healing and overcoming developmental delays can be a slow process. But, Maryam’s progress is remarkable. Nothing is holding back this CDTC Hero now.

About our Hero of the Month

Each month, CDTC staff nominate one of our children as our Hero of the Month. These special boys and girls are heroes in our eyes. They show strength, perseverance, determination and a positive outlook while facing great challenges.

Their stories are powerful and heartwarming and reflect the impact CDTC and you, our community, has on their daily lives.

Thank You to
Our Sponsor

A trip to our Clinic is more than just a doctor’s visit to a child with special healthcare needs.

But, insurance doesn’t cover everything. That’s why your gift is so important.

Melissa is an Early Steps Hero!

Melissa is an Early Steps Hero!

Melissa’s pediatrician recommended that she participate in the Early Steps Program when she was 18 months old. He was concerned about her communication skills and possible autism. Her parents shared at intake that she was not using any words to communicate and she subsequently did receive an autism diagnosis from her neurologist.

Melissa received a variety of Early Steps services including speech, occupational and physical therapy as well as early intervention sessions with an Infant Toddler Developmental Specialist.

The 2 ½ year old child the intervention team saw at her recent Individualized Family Support Plan meeting was a completely different child than was seen at Clinic upon intake. Melissa now imitates sounds and words, uses gestures on her own to communicate, has significantly decreased sensory seeking behaviors, is smiling a lot more and is much more engaging than before.

Melissa’s mother is very thankful for the guidance and support Early Steps provided to the family. In addition, her mother is appreciative of the understanding she now has regarding Melissa’s special needs.

Her Infant Toddler Developmental Specialist and therapists have done an amazing job in helping Melissa blossom as she continues to learn many new skills and reach new developmental milestones. Melissa is definitely an Early Steps hero as she is breaking barriers every day with the support of her proactive family and her excellent early intervention team.

*pictured above: Melissa & her Early Steps Service Coordinator Riane. 

About our Hero of the Month

Each month, CDTC staff nominate one of our children as our Hero of the Month. These special boys and girls are heroes in our eyes. They show strength, perseverance, determination and a positive outlook while facing great challenges.

Their stories are powerful and heartwarming and reflect the impact CDTC and you, our community, has on their daily lives.

Thank You to
Our Sponsor

A trip to our Clinic is more than just a doctor’s visit to a child with special healthcare needs.

But, insurance doesn’t cover everything. That’s why your gift is so important.

CDTC’s Miracle

CDTC’s Miracle

Miracle came to CDTC when she was 24 weeks-old. She left the NICU with a g-tube to ensure she would get the fluid and calories she needed to grow. She also had deformities in her feet.

She received early intervention services through the Early Steps program and is currently enrolled in our ECHO program and receives Health Education and Medical Case Management as part of our Patient Centered Medical Home.

She has come so very far in her short four and a half years. Miracle’s g-tube has been removed. She’s eating well on her own. Her bubbly personality, quick speed and growing height certainly attest to lots of energy.

Her CDTC care team, lead by Dr. La France, has also been helping to address her feet deformities. Miracle’s been through several surgeries to correct their position. She recently had surgery on her hip and was in a body cast for several weeks. She is now walking with a cool purple walker and getting physical therapy. Miracle is resilient. She’s a fighter and very strong willed. And, it’s guaranteed this vibrant little girl will always be smiling, happy and very talkative!

About our Hero of the Month

Each month, CDTC staff nominate one of our children as our Hero of the Month. These special boys and girls are heroes in our eyes. They show strength, perseverance, determination and a positive outlook while facing great challenges.

Their stories are powerful and heartwarming and reflect the impact CDTC and you, our community, has on their daily lives.

Thank You to
Our Sponsor

A trip to our Clinic is more than just a doctor’s visit to a child with special healthcare needs.

But, insurance doesn’t cover everything. That’s why your gift is so important.

CDTC HEROES OSIRIS & ODIN

CDTC HEROES OSIRIS & ODIN

Twin brothers Osiris and Odin came to CDTC when they were a few months old. Born at only 28 weeks, the premature babies needed medical care and early intervention services. Both were having feeding issues. Both needed extensive medical follow-up. Without help, they were at risk of developmental delays following several months in the NICU.

First time parents Angie and Enrique were grateful when the staff quickly provided solutions. The boys’ medical and nutritional needs were being met.

The twins were in good hands. They now had a CDTC care team of doctors, nurses, social workers, health educators, nutritionist and early intervention professionals. And, the Center’s Pediatric Dental Clinic would round out their care.

Their seven-year journey has been a long one. Luckily, mom knows she can always call the Center’s Telephone Triage for immediate medical concerns. And, her care coordinators are always there to help navigate the healthcare system and access other medical services the boys need to thrive.

With encouragement, support and guidance from the boys’ team, Mom and Dad are confident they can make informed decisions about their sons’ care.

“Don’t give up,” is Enrique’s greatest advice. “Realize that your child is not broken, just different. Because they will surprise you and rise beyond expectations.”

Today, Osiris and Odin are happy boys engaged in school and learning. The brothers are growing into their own distinctive personalities. One excels at math and the other is more artistic and expressive.

The boys have come so far since their first visit to the Center seven years ago. Every day there are still doctor appointments, blood work, medications and tests. To them, this is life. They just smile and move on without a care in the world.

“I wish I had that kind of strength,” shares mom.

About our Hero of the Month

Each month, CDTC staff nominate one of our children as our Hero of the Month. These special boys and girls are heroes in our eyes. They show strength, perseverance, determination and a positive outlook while facing great challenges.

Their stories are powerful and heartwarming and reflect the impact CDTC and you, our community, has on their daily lives.

Thank You to
Our Sponsor

A trip to our Clinic is more than just a doctor’s visit to a child with special healthcare needs.

But, insurance doesn’t cover everything. That’s why your gift is so important.

CDTC December 2017 Hero of the Month – Sagota

CDTC December 2017 Hero of the Month – Sagota

Sagota was born into a world filled with challenges. Doctors diagnosed her with Vater Syndrome, a combination of several birth defects that frequently occur together and affect multiple areas of the body. Sagota’s physical and genetic anomalies required more than 12 surgeries before she reached her sixth birthday! Continue reading