CDTC December 2017 Hero of the Month – Sagota

CDTC December 2017 Hero of the Month – Sagota

Sagota was born into a world filled with challenges. Doctors diagnosed her with Vater Syndrome, a combination of several birth defects that frequently occur together and affect multiple areas of the body. Sagota’s physical and genetic anomalies required more than 12 surgeries before she reached her sixth birthday! Continue reading

“When I think what a hero is, it comes down to being brave. Leia’s family is brave. Despite all the challenges and setbacks with her development, they’ve never given up. They have always kept going with what they’ve learnt. Leia is such an amazing little girl that has had to face many challenges at her young age. Her family has been there the entire path and it is truly admirable.”

 – Merlyn Moreira, CDTC Early Steps Service Coordinator

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After the storm, we reached out to every CDTC family to determine how to best help them. Care Coordinator Kris was humbled by the clients she visited.

​Kris drove up to Angela’s home to find the roof gone, the family’s belongings on the curb (pictured left) and Angela and her three children waiting patiently on the neighbor’s porch for her arrival.

Angela was grateful for the supplies and gift cards that would help her get through the next few days. Seeing the devastating situation, Kris wanted to come back; to bring more and do more. But Angela would only take what she needs right now. It was enough to know Kris and CDTC will be there again when repairs are complete and her family needs help settling back into their home.

Client Tyrese was a different story. The 17-year-old already had trust issues. He wasn’t sure anyone was going to help when the family found themselves without power. Kris was running late and she knew he would be anxious. He was certain she wouldn’t come. But she did. His relief gave way to happy smiles and three hugs when she arrived with a care package.

​Your support at this desperate time, gave our families great comfort this past month and gave Care Coordinators like Kris the resources to meet our clients’ most pressing needs. 

Going from Fear to Hugs Makes Twins Our Heroes

Going from Fear to Hugs Makes Twins Our Heroes

From Worst Fears to Warm Hugs – Twins Become CDTC Heroes

Twins Jemi and Jemmy first visited CDTC’s Dentist, Dr. Alonso, for a routine cleaning when the clinic opened in 2014. They were just 3 years old at the time.

The boys gave new meaning to being scared of the dentist.

“The first few visits were really bad,” remembers Dr. Alonso. “They would not sit in the chair. They were extra scared.” Continue reading

Finding the Positive When Your Different

Finding the Positive When Your Different

Michael is a 13-year-old boy who lives with his mother, father and little sister. Mom and Dad could not wait for Michael to be born. When Michael arrived, his parents learned he had amniotic band syndrome.

For Michael, the bands that cut off his blood supply in utero caused his fingers and legs to entangle and lose blood flow. He was born with webbed fingers and toes. In addition a defect in his leg affects the blood supply to his leg. The imprints on his legs where the bands were entangled are still visible.

As the first-born child, his parents were naturally frightened as to what his condition would mean for his life. He had two surgeries as a toddler to separate his fingers and toes. He wore casts on his hands and feet for several months following each surgery. Therefore, most of his parent’s memories of him as a child include his casts.

The surgeries repaired his blood flow. However, his fingers are different lengths. His left hand also still has defects that can make simple everyday tasks more difficult.

It’s Not Always the Physical Challenges That Are Hardest

As Michael progressed through school, the other children in his class teased and made fun him. Some cruelly referred to him as “no hands Michael.” Mom’s heart broke over the ridicule he endured simply because of his appearance and other children’s’ fear of what they do not understand.

Now that he is older, Michael knows how to talk to his peers about his condition and deflect any negativity that comes his way. But he’s not bitter about what he has gone through. Instead, he uses his condition to empathize with other children with disabilities and goes out of his way to be nice to others.

Through the help of his Lift a Child to Health Care Coordinator at CDTC, he is working with a counselor. He now has the tools to process his feelings of grief and anger. He is a wonderful student and doing very well all around. His Mom describes him as smart and helpful. She knows that he has a very bright future ahead of him.

Michael’s Journey Prepared Them For The Next

Because of what the family has gone through with Michael, they were better prepared when his sister was born five years ago with a heart murmur. Nevertheless, they have had to learn a lot in regards to her treatment. She shares the same LCH Care Coordinator who helps the family to address her health needs. The family would be lost without their CDTC doctors and the guidance and support they receive from their Care Coordinator.

Michael and his family’s story is inspiring because they have come out of a disheartening situation with such positivity and regard for everyone they encounter.